- Writing
- BBC News World
Canadian singer Celine Dion has announced that she suffers from an incurable neurological disease, which has kept her away from the stage and caused her mobility problems.
In a moving video posted on her Instagram account, the interpreter explains that the doctors diagnosed her “stiff person syndrome”a rare autoimmune disease that affects the nervous system and which she explains affects “one person in a million”.
“As you know, I’ve always been an open book, and I wasn’t ready to say anything before, but now I am,” Dion said, fighting back tears.
The performer of “my heart Will Go On“He explains that he has been suffering from health problems for some time and that so far it has been very difficult for him to meet this challenge or to talk about the difficulties he is going through.
“Although we are still learning about this rare disease, we now know what caused the spasms that I have,” admits the 54-year-old singer.
These spasms, he explains, “affect all aspects of my daily life, sometimes making it difficult for me to walk.” Syndrome It also affects your vocal cords.“Don’t let me use them like I used to.”
In the video, which was recorded in English and French, The interpreter speaks with emotion and affection to her followers, whom she says she “misses a lot”, and whom she hopes to be able to see again very soon in person and on stage.
However, Dion also announces that the tour which was to begin in 2024 and which would take her through a multitude of European countries, will have to wait. The information accompanying the video ensures that the the shows will be postponed to 2024.
“I have a great team of doctors who work with me to help me recover,” says the interpreter of “Let’s talk about love“, who also has words for his “beloved children, who support me and give me hope”.
Celine Dion had three children with her husband and former musical director René Angelil, who died in 2016 from throat cancer.
A disease that affects one in a million people
“Stiff person syndrome” is characterized by fluctuating muscle stiffness in the torso and limbsand increased sensitivity to stimuli such as noise, touch, and emotional distress, which can cause muscle spasms, as defined by the US National Institute of Neurological Disorders and Stroke.
People who suffer from this condition, who It affects twice as many women as men.they may have difficulty walking or moving around, and often avoid leaving the house because street noises can trigger spasms and falls.
Scientists still do not understand what causes this syndrome, although it has been associated, according to the American institute, with other autoimmune diseases such as diabetes, thyroiditis, vitiligo and pernicious anemia.
The disease is so rare that it is often misdiagnosed as Parkinson’s disease, multiple sclerosis, fibromyalgia, a psychosomatic illness, or anxiety and phobia.
Although it is a disease that has not, for the moment, healedmedications such as muscle relaxants can improve symptoms.
Therapy
In the video, Celine Dion explains that “I’m working hard with my sports medicine therapist to regain my strength and my ability to perform”, although she acknowledges that it is a real “test”.
“All I know how to do is sing. It’s what I’ve done all my life. And it’s what I love doing the most,” she says, her voice cracking.
Dion, the youngest of a family of 14 brothers Originally from the French-speaking Canadian province of Quebec, she began singing as a teenager.
Her musical career spans more than four decades, making her the queen of the romantic ballad.
Although most of its international hits, as the main theme of the film’s soundtrack “titanic” -which won the Oscar for Best Original Song in 1997- was sung in English, Dion she is the best-selling French-language performer of all time.
In the video posted to Instagram, Dion gets emotional while addressing her followers.
“I miss you so much. I miss you all, being on stage, playing for you”, admits the singer who, in January of this year, already had to cancel a tour in North America.
Right now, he says, “I have to focus on my health, and hopefully I’m on the road to recovery.”
“I really hope to see them very soon,” he concludes.
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